Day 88 HYPER video

Day 88

Day 88

30,000 IU a day of D3
800 MCG a day K2

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

88 days later, and the hyperactivity is still so strange.  Constant inane babble.  Always moving, or fidgeting. 

Day 84 - 87

Day 84 -87

30,000 IU a day of D3

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

The last few days has taken Monica over an hour to go to sleep at night.  And can we say fidgeting?  Hello ADHD overload!!  She is running around, yelping like a puppy.  Happy puppy.  

Day 83

Day 83

30,000 IU a day of D3
800 MCG a day K2

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Happy Sunday!  Monica is full of happy energy today!  

Day 81 and 82

Day 81 and 82

30,000 IU a day of D3
800 MCG a day K2

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 Tsp of Nordic Naturals Ultimate Omega Fish Oil

Thanksgiving Break.

Thankful for Monica to be home until 12/2.  Give her a chance to rest and lose the bruises.  It is hard for her to work at school.   Even before the Nemechek protocol.  She sits in a tall chair, and bangs the top of her legs under the desk, and gets awful black and blue marks. 

Day 80

Day 80

30,000 IU a day of D3
800 MCG a day K2

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Super great morning. 

Day 79

Day 79

30,000 IU a day of D3
800 MCG a day K2

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Monica had a field trip yesterday, and a great day per the teacher.   She was overtired by 7-8 pm, so we were in bed early. 

Nothing really new with progress or setbacks. I'll take it!

She has been extra stimming lately.  Hands in the mouth, touching everything with wet fingers.  However, I never stop her from that at home. It if helps her, and doesn't hurt her, I'm good. 

Day 78

Day 78

30,000 IU a day of D3

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Monica had a huge meltdown at school yesterday when she didn't want to stop the scooters for lunch. 

Day 77

Day 77

30,000 IU a day of D3
800 MCG a day K2
1 pill of Sundown Fish Oil

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Monica woke up today, grabbed my phone while I was downstairs getting the morning ready, and went under her toddler bed watching Youtube end credit scenes to make her cry.  Like she was doing yesterday evening. When she gets like that, she can be violent.  Hitting me, and herself. Nothing can describe it.  Jumping out of her skin with mega emotions. 

Her nose was a little stuffy, so I gave her an antihistamine.  We now have about 40 minutes to get in a zone for school. We are watching Daniel Tiger, she has her Tablet watching Sesame Street, and playing with Rock, Marbles and Coins in a empty Veggie Tray. 

I have said this for over a year.  When her mother goes over seven days to visit, she does the end credit scenes every time.  I have spoken to Alyssa about this, and she swears she will be consistent. I don't ask why, because it will always be a lie.  Overtime, extra shifts, etc. It comes down that why doesn't matter.  She is either here or not.  And she chooses not. If it was a male, she always has found a way.  That's what is important to her.  

So forget about Monica's absent mom, and take a look at what she was doing before I called her over, now she is snuggling with me.

Day 76 Pictures

Day 76

Day 76

30,000 IU a day of D3
800 MCG a day K2
1 pill of Sundown Fish Oil

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Happy Sunday.

I am truly seeing the relation to ADHD and its progression to Autism over the years.  Monica seems more ADHD than Autistic every single day.  Her stimming and hyperactivity has skyrocketed.  Between her and Grandpa, it's no wonder I am exhausted.  

While many people on this protocol would call this a stand still, I am far from that opinion.  So many posts on Facebook talk about non verbal being the #1 tell all as far as improvement goes.  I am truly blessed that I don't limit Monica to verbal or non verbal.  She communicates more than most people, just not with words. She has gone as far as making a triangle with her fingers to tell me that she wants to watch the Shape O Bots episode on Sesame Street.   Need I remind you she is 6?  Not as far behind as a lot of non autism kiddos. 

While I would love to find something natural to slow her down a little, I know her brain is actively healing.  I am not messing with that.  I urge anyone who reads this later, that I know you are tired.  I know you feel like you are in this alone. You are not.  We don't have the language to explain our pure exhaustion. That's why you see so many of us blog, or video, or FB to vent.  It's our sanity, as well as documentation. 

Monica needs down time as much as she needs stimulation.  If you allow her to bust that energy out, she will have no choice but to take a break on the couch like she is right this second with her tablet with her fingers in her mouth stimming. 

Always remember this is not a race to cure.  This is a pace to healing.  We have no idea if or when things will happen.  Take breaks for the kiddos and yourself.  Don't let your spouse guilt you.  If they don't spend 24/7 365 days except for sleep and school, they probably don't spend 1 hr alone with the kid, and couldn't handle 45 minutes of meltdown.  It's not their fault.  God chose you as the one to care for our kiddo. Accept it, and look for us real people that get you. 

Day 70 through 75

Day 70 - 75

30,000 IU a day of D3
800 MCG a day K2
1 pill of Sundown Fish Oil

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

I take full ownership for not posting.   I am not sure if I have carpal tunnel, arthritis, or both. But pain rules at age 47. 

Husband also was home 5 of 7 days, and making me insane.

Monica had a really good week.  A few blips, biting actually at school, but per the teacher she is 100% better than she was. 

This came from our District Superintendent. 

---------- Forwarded message ---------
From: Dr. Kathy Hinz 
Date: Tue, Nov 12, 2019 at 2:21 PM

Good afternoon, I had the pleasure of getting to know Monica today at South!  She was in the motor room while I was walking around the school.  When I entered the room she was asked by a staff member if she was ready to go back to her class. She came right over to me, grabbed my hand, and together we walked back to her classroom. I stayed with her in the classroom for awhile and then she picked me again to walk with her when the class took a motor break walk throughout the school. She is such a beautiful girl. I couldn't let the day pass without telling you how much I enjoyed meeting and spending time with Monica this morning.  It was the highlight to my entire day.  Sincerely, Superintendent

Day 68 and 69

Day 68 and 69

30,000 IU a day of D3
800 MCG a day K2
1 pill of Sundown Fish Oil

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Monica has been up and down all weekend. Her mother and sister came over yesterday for 4-5 hours. 

I am trying to journal her behavior.  It's not the easiest. She has been up and down, and everything in between since we started.  I am exhausted. The past few days all my joints hurt, and carpal tunnel is killing me. If my husband tells me to move more, I am going to make a scene at Thanksgiving in front of his sister.   

Zero days off.  

Day 67

Day 67

30,000 IU a day of D3
800 MCG a day K2
1 pill of Sundown Fish Oil

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Monica was in a super great mood this morning.  Running around, watching Elmo, ate a good breakfast. 

Just typing out loud.  If the Nemechek protocol is working, and slow healing, I would have to say she has been showing more ADD or ADHD more than autism lately.  It's like she has all this energy and sitting still is just not an option.  

It is a much improved result from the awakening aggression for sure. 

I do feel bad for not sharing with my husband what I am doing. However, I am the one raising her.  I am the caregiver. He is quick to say "enough", but only because it annoys him. 

Even with the D3 and K2.  He was pissed I didn't tell him about starting it.  But look how it helps her headbanging!!  Me stopping it and restarting it is true proof that it aids in her anxiety. 

Day 66

Day 66

30,000 IU a day of D3
800 MCG a day K2
1 pill of Sundown Fish Oil

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Well.. we curbed the headbutting with adding back the D3.  She bit the teacher today, but no write up. 

It's going to be weird.  If we don't see progress with the Nemechek protocol since we need the D3 for the behavior stuff. The issue is back to the First Do No Harm.  The entire reason I started the D3 and the K2 after 4 yr old preschool, was because they wanted to fit her for a helmet for headbanging.  It was like a softball on her head 24/7. Almost immediately after starting, she stopped.  And then I stopped it for this, and it started again. 

For me anything I do is not for me, as much as her quality of life. I hope she still has gains, but I wouldn't cut it out again until summer 2020 where I can monitor her. 

Her mother has been MIA again for over two weeks.  Alyssa's current boyfriend has a lot of issues.  Beside being over 30, and can't hold a job, he also has no drivers license and still driving. Alyssa has no backbone so it might be a while before we see her.  It sucks for Monica the non consistent. But Alyssa also abandoned her for over a year straight, so as you see the caliber of person isn't consistent either. 

Day 65

Day 65

30,000 IU a day of D3
800 MCG a day K2
1 pill of Sundown Fish Oil

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

The school really thinks she has an UTI.  Ripping off pull up, grabbing at the pee pee area.  So we are going into the dr today. 

**  NO UTI.  

Day 64

Day 64

30,000 IU a day of D3
800 MCG a day K2
1 pill of Sundown Fish Oil

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

The morning was okay.  When she doesn't want to do something, she gets angry.  She was playing outside before the bus came, and when the bus was coming up the street, she charged me. 

This is a strange time for me.  Because a lot of this she was doing pre protocol.  The goal is to help her get past this BEFORE she really hurts herself or someone else.  

As for the "awakening"  She had a good day at school yesterday, but until we get a bunch of good days, I won't get too excited. 

Day 63

Day 63

30,000 IU a day of D3
800 MCG a day K2
1 pill of Sundown Fish Oil

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

And.. she had a good day at school.  Nice night so far, and no new bumps or bruises on her head or legs.  Going to watch the Voice in a few minutes and then bed. 

Day 62

Day 62

30,000 IU a day of D3
800 MCG a day K2
1 pill of Sundown Fish Oil

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Happy Sunday. Trying to get out of the house for a bit, and before Sunday football.  Showered and ready.  Waiting for His Royal Highness, the Cuban Prince or Greek God to make breakfast so I can clean up and get Monica out.  

Monica was very jumpy yesterday, Saturday morning.  She is very hyper today as well, but in an active good way.  She is watching Daniel Tiger, with her plastic toys on the dining room.  I think it's a mall trip, or at least the dollar store. 

Day 61

Day 61

30,000 IU a day of D3
800 MCG a day K2
1 pill of Sundown Fish Oil

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Monica came home with a goose shaped egg on her high forehead, with a note that she is "still having a tough time".  Which means since there was no write ups, she stopped hitting peers and teachers, and went back to self harm. 

When I started the D3 and K2 it was because her 4yr old preschool teachers thought she might had to be fit for a helmet for kindergarten. That's when I researched the Coimbra Protocol. 

You can see the site that I read here. Even went back and forth with the author Jeff Bowles.  Have the emails with that on gmail. 

https://taked3.com/the-cure-for-autism-in-children-and-possibly-adults/

When starting the Nemechek protocol, it said no more supplements, which I was willing to do.  However, maybe the awakening period and the head banging without the D3 and K2 was the cause. 

Last night before bedtime, I went back and reread those emails. I hadn't upped her dosages even though she had just turned five and only 47 lbs. She is six now at 59 lbs, 4 ft and all muscle. 

At this point, reading everything on the Nemechek and the Coimbra Protocol for natural vitamins, minerals, and fiber treatments, this is the point I am at.  Finding the right combination and dosages of these natural ingredients, that promote the gut and brain healing. 

We already know the D3 and K2 stopped the headbutting within a 1-2 weeks before, so this will be a big test to decide if I scale back the Nemechek dosage if this doesn't help. 

Too many people don't admit maybe they did one thing or another wrong.  Too many people refuse to adjust and just stop and go.  I stopped the D3 ad K2, and that is on me.  

It's so odd to journal all this, because I also have notes jotted down about the next day after I cut her from the D3 and K2, she jumped on a bicycle at Walmart and cruised the store. At that moment I was kicking myself for not listening to Dr Nemechek to remove all supplements. 

I am not a dr. I am not a health professional.  But the goal in all of this is to "Primum non nocere "

I just want to make her life to the point where her body is working for her, not against her. Autism was caused by a lot of changes to the foods we ate over the past 40 years with processed chemicals. If we have doctors wanting to ease some of the healing to kick start itself, I will keep trying. 

Ponder that!

Day 58 and 59 and 60

Day 58 and 59 and 60

20,000 IU a day of D3
800 MCG a day K2
1 pill of Sundown Fish Oil

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Halloween is over, Monica had zero interest, nor wanted to go to Chuck E Cheese.  I don't blame her.  We are spent. 

I went back to her other doses on the Coimbra Protocol the last 1-2 days.  I have to see if that really helped her anxiety and anger. There is one thing to experience awakening.  Another to cause a concussion, and harm to her teachers and peers. 

The stress has caused me to meltdown. Aches, pains, and pure exhaustion. Grandpa does not help.  We are all to have perfect work ethic.  Not all of us can be perfect like he is.  Fine work integrity.  Always getting things done on time.  Never needs a alarm to wake him up, just jumps out of bed, ready to tackle the day. 

(He is none of that, but claims he is while putting the rest of us down for our laziness, like we don't see him in fuck off mode 95% of the time.)

I don't know why I add this stuff here.  Perhaps because I feel a heart attack coming on, and maybe he will read this after I am gone.   I have a job to do, so I don't have time to stick up for myself. He was complaining about another woman at his work that constantly messes things up. I wanted to say, "Sorry all the women in your life lets you down"  But I know better.