Day 56 and 57

Day 56 and 57

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 TSP of Now Brand Inulin on Day 56 and 1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

I finally made the decision.  I am scaling back the inulin to 1/2 tsp today when she gets home from school.   I think she is reacting to it gas wise, and it is too much for her digestive system. I think this might help her level off as well. 

Day 55

Day 55

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

20,000 IU a day of D3
800 MCG a day K2

It took everything I had not to scale back the Inulin this morning.  Some parts of the day is so aggressive.  But I had to tell myself if this wasn't working, that's when you stop, not when it is. 

Day 54

Day 54

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

20,000 IU a day of D3
800 MCG a day K2

Happy Saturday.  Day 54 of the Nemechek Protocol.   Days like today I wish we were in Lake Geneva in the pool.  Just have a rest and relaxation day.   Grandpa is in his "gotta get stuff done before winter mode" Which is 365 days a year mode of "gotta get something done before some invisible time".   While his sister is on her 5th vacation and we are stuck being his gophers.

You would think I would complain more, but I can't really.  I have to stay positive for Monica.  We don't need two people on edge 24/7. 

She actually brought home three write ups for hitting.  Two on Thursday, and one for Friday.  Hitting in Circle time twice, and once in group.   I am hoping adding back the D3 and K2 will help with that focus. Next time I will wean her off.  I would like to set a 2020 goal for her to be 100% off of the D3 and K2.  We will revisit that next month to see if this helps her. 

Being close to two months on, I also hope that the awakening period of her added aggression will also dwindle.  For me it's strange because I have a view on it that many forget.  It's easier at six years old than a preteen awakening, I assume.   Or a nine year old in the back of a police car because it was too much for school to handle.  

I don't mind the added stimming, or bouncing off walls.  Have you met my 47 year old husband?

Day 53 Picture

Spirit Day at School.  One happy Sabre Cat!

Day 53

Day 53

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

The note on yesterday's school said she is getting written up for two incidents yesterday, but didn't tell me what.

Not really sure how sending home MAJORS for a non verbal autistic six year old teaches behavior.   I am sure she doesn't see that as a deterrent.

I added back in her D3 and K2 doses this morning.  Maybe that will help.  I know dr Nemechek says no other supplements, and I don't want to, but if the school can't handle the awakening, I can't have her expelled either. 

Dosage of D3 

2 pills of D3 in morning

D3 250 MCG (10000 IU)

20,000 IU a day of D3

Dosage of K2 

8 Pills of K2 in morning 100 MCG 

800 MCG a day 

Day 51 Video

Day 51 and 52

Day 51 & 52

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Not sure how I missed Wednesday's post.  Here is Wednesday and Thursday. 

Monica is still very up and down.  Times she seems really alert and okay, and other time like ants are attacking her internally.  School has been rough too according to her teachers. 

Her mother and sister came over last night, Wednesday, and that went well.  I let them bathe together.  They are so alike in some ways, and totally different when it comes to sensory issues.   

One thing is for sure, they are ham and cheese sandwiches when it comes to in front of the camera.    Madison was singing Greatest Showman, Monica was making silly faces in front of the camera. 

As for Monica and the Nemechek protocol, I have to believe that this up and down is the brain healing.  She is noticing things more at times, and this is causing reactions in every inch of her sensory.   

People talk about aggression on the Facebook group and always want to stop.  I don't view it like that at all.  It's just reaction to the pardon my language, fucked up internal feelings.   For a kid that feels everything, this stinks for her.  

It will stink worse when she isn't six and in first grade. Hence the protocol urgency to begin the life long healing process. 

Day 50

Day 50

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

I added back two pills D3 250 MCG (10000 IU TOTAL) this morning to her applesauce. She was on D3 for over a year.  Maybe it was dumb to take her off cold turkey.  Perhaps that wasn't so wise.  She was on 20,000 IU a day.

Maybe I will just give her 5,000 IU a day of D3.  Let us see if this helps that jumpy she has had since her last spell of jumping out of skin. 

She is pretty good this morning. The ponder

Day 49 Part 2

Day 49

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

We had a major mini meltdown for about 10 minutes.  It looked like she had fire ants eating her.  She was thrashing about.  Nothing preceded this.  Just sitting watching tv, and boom. 

She got up to run around, and I was afraid of her hurting herself by throwing herself against the tv, or a glass cabinet, so I asked her if she wanted a grape.  She told me grapes on her talker, so I gave her some in a bowl, and viola, she went back to watching tv.   

One thing I noticed right away is her strength.  Within the past two years, she cut her lip on a Precious Moment, and we had to hold her down to stop the bleeding.  Another time she slammed the shower door, and it exploded down on her.  She had a few cuts and I had to hold her down then too.  This was all before kindergarten, I believe late 2017.  Back then I used all my power, and was weak.  Even when we took her to get a strep culture in the beginning of 2019, she was so strong, I ended up with bruises and was exhausted. 

Today, just massaging her legs during the meltdown would feel like if I was massaging a professional kickboxer.  Even though she wasn't fighting me like those other times, I could feel at any time she could destroy me.  She is all muscle.  

We took her to the dr two weeks ago.  She is 4 ft tall and 57 lbs.  She has zero fat on her body except her buttocks.  That's 57 lbs of muscle.   

This is one of the reasons I won't give up on the protocol.  Clarity for her to be able to regulate her emotions and physical exertions is the only way she won't hurt herself and others.    

Can I remind you she's 6 and in first grade?  I don't think I ever had the strength she currently has.  I don't think Grandpa did either.  I know her parents didn't. 

Day 49

Day 49

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Welcome to Awakening Part Three.

Throwing things, angry, kicking.  I hate to send her to school, but she has to go.  Grandpa doesn't really help with his armchair parenting by screaming from the other room and saying, "Monica be nice".  Almost as bad as telling me, "She's bored" while going through a sensory meltdown.  But how would he know?   He can't deal with her throwing bacon or eggs on the floor.  

Autism parenting is not for the delicate. 

Day 48

Day 48

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Sunday.  We didn't go anywhere yesterday except the backyard to mow and rake up leaves.   Monica loved being outside, but that sun was warm.  After an hour she was feeling it.  

If I had to describe her yesterday and today, I would say, high strung. 

Day 47

Day 47

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Saturday Day 47.  

Remember that project I told you about last week that I thought would happen?   Looks like today.  Driving to Chicago, and Rick taking apart a fence while I chase Monica. NOW I wish I had a bike for her to at least ride. Maybe the park. 

Day 46

Day 46

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

We went to Target and Five Below last night to give her those visual stims she adores so much.  She loves to window shop.  She woke up this morning a little more jumpy.  Getting ready to wait for the bus. 

I wish there was more to report.   Kinda been status quo this week.  And after the previous weeks of awakening, I have to say I will take this.  

Day 45

Day 45

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Good solid morning with Monica.  

Yesterday, I got a call from Monica's school that she has been sticking her hand down her pants. Today, I put her in sweatpants  with a tie string.  Hope that helps with that. 

The key with autism, is you can't overthink minor issues.  

Day 44

Day 44

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Another really good animated morning for her. She first had to pick the "right" clothes. I picked the wrong one.  Then she had to listen to Ed Sheeran on Sesame Street.. "To school, school, school, school, school we go"  Ate breakfast, and we waited for the bus. 

If anything, this enhanced her already awesome personality.  Animated is the only word that describes her. 

Day 43

Day 43

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

First morning in a while zero push back for school or wearing pants in lieu of shorts.   I am hoping for the school the aggression period is over.   About 22 more minutes of rest before she gets on the bus.

We did go to a couple of stores yesterday, and she rode a bike around Walmart, again.  She really loves it.     Everything seems so surreal.  I always see people in the groups say they feel like they got their child back once they see these changes.   Monica being six, with severe Sensory Processing and ASD since birth, this is more like added awesome to her current awesome personality.   She is still Monica.   She asked to "Play Bike" on her talker. She asked for "Want Cookies" a little later.  She says "MMMMMM" in lieu of more.  She loves saying Bye Bye.  

And still, managing expectation is very important.   Her brain is still growing while her brain just started to heal. If we thought the brain was confusing enough.. can you imagine what Monica is going through right now?  I would like to think it is a better focus for her, however what if it is just added noise because instead of being tuned into one thing, she is noticing everything.  That could be just as overwhelming!

One last observation.  I also noticed instead of videos and movies, she has also been looking at books on youtube, or on websites.  She learned to navigate Samsung internet on her tablet, instead of just the apps, and has several tabs open with different books. 

Day 42

Day 42

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Happy Columbus Day!  Monica on the floor playing, and watching her tablet.   It's gonna be a smooth day.   Rest and the store later.

Day 41

Day 41

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Not only did we get Monica coloring on the wall, but a full bowel movement in the toilet.   Don't worry, I only took a picture of the wall. 

I am very happy Monica is home tomorrow, alone with me we get a chance to just be us, play loud music, and just enjoy the day. 

If you think drawing on the wall is bad, don't.  Sure I had to scrub, but I would have been doing this years ago.  Monica wouldn't color!  Not on books, not on paper.  She normally would dump the box or crayons, or smell the crayons. That's all. This is PROGRESS!

9:33 PM update. 

Today has got to be the best day.  I know I said that before, but really.   Everyone is starting to notice how interactive Monica is with people.  Monica was tickling my feet while I was feeding her, and then cringing and cracking up laughing while my hands were getting ready to tickle back.  Monica's mother came to visit, and couldn't believe how she was PLAYING with me.   Earlier in the day, Monica was hitting her head on her tablet, so I took it away, and put her in a timeout on the couch.  Normally that would have brought a major meltdown.  Instead, Monica whinged a little, then went over by her toy box and sat there until I said let's go get the tablet.   

It is like Monica finally gets it.  She's not anxious that we don't understand her needs.  She knows we see, hear, and accept, and we are not just going to give in. We didn't before either, but that would drive her into the meltdown, thinking we just didn't understand.  Now she knows.. We get it too honey, the answer is still no. 

Day 40

Day 40

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Monica slept in, until 830.  She woke up in a really good mood.   I am not sure if the Cranberry in her food has helped her UT, but I will say she pooped A LOT this morning.  Almost like someone gave her Miralax.  I can't help to think that if that stuff was stuck inside her, that would really make her angry and lash out. 

My goal today is to take it easy.  Which means the hubby will probably want to stress out about some project he put on himself and now make it my problem.  We will figure it out. 

Day 39 Part Two

Dear Readers,

When I saw bruises on her head again, it makes me kinda sad.  We went so long without them, and poof, they are back.   According to her teacher, it is a good/better day if she is not violent with peers of staff, but okay if is self harming.

Welcome to Autism 101.

And please understand.  I know the school district has to protect their students from getting hit in the face from Monica.  I get it.  Just sad to see the bruise.

Day 39

Day 39

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 Tsp of Nordic Naturals Ultimate Omega Fish Oil 

* I gave her the Ultimate Omega today after school.  And WOAH.  She is angry.  I think she agrees more with 1 pill of Now Brand DHA-500 Fish Oil

I don't want to jinx it, but the aggression seems to be dwindling. It's still there, but Monica is aware of the right and wrong about lashing out, and is checking herself.  She was doing that this morning for sure! 

It's Friday, and Monday is Columbus day, so three day weekend for us.  

Not sure if I typed this or mentioned it.  But I have added this for short term. I might do it for 7-10 days.  She was grabbing at her pee pees and when we went to the dr, she wouldn't pee in a cup. The dr didn't think it was an infection because of random grabbing.  And no fever, but I decided why not some cranberry in her fruit cups.  She hasn't noticed and its cranberry, not an pharmaceutical anti bio. 

Day 38

Day 38

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Back at school today. 

Yesterday I kept her home due to the hitting and pinching me after breakfast. We went to the dr's office to check her out, update the aggression. 

The dr's office moved down the street.  The same building she went to therapy before.  She saw a new dr.  He was probably in his late 50s, and very soft spoken.  

Monica is 57 lbs. 4 ft tall.   She wasn't happy to be at the dr.  However, for the first time since she was a baby, she sat on my lap, and the dr checked her.  Ear, nose, throat, heart, eyes.  WHAT?  Yeah.. she barely put up a fight.  

She has had a cough for about a month, and the dr said it was post nasal drip causing that.   Other than that, he will share the aggression with her primary, and if it doesn't stop in two weeks to call back. 

Okay.. then. 

I am not about putting her on pharmaceuticals.  It's not that I don't believe in them.  I am on Lexapro.  As a child that had panic attacks since 1972, and then put on Lexapro 40 years later for them to disappear, I do believe in them. However, she's SIX!  Let's stick to natural as long as we can. 

Here she was waiting indoors for the bus this morning. 

Day 37

Day 37

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

I decided to keep her home today.  Monica was very very jumpy.  I got punched, squeezed in the chest several times,and in the face. It really doesn't seem like anger, just frustration. Right now she has her tablet under her Daniel Tiger blanket on the living room floor, probably grinning under there.  Either way, I didn't think she would have a productive day at school, so it is probably for the best to stay home and regroup.  

I will get her the protocol in the next hour.   Keeping her home was a last minute idea, so I didn't add to her breakfast. 

This awakening is for the birds.  

Day 36 Part Two

Day 36

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Monica was much better per her teacher's note and an email

Jessica	3:14 PM (2 hours ago)
to me

Awesome thank you!!!

Much better day today...is currently out for recess 

--

Jessica

ASPIRE Teacher (K-1)

That's what really matters.   Just like any kid, there will be good and bay days. 

Day 36

Day 36

1 Tbsp of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal)
1 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Much better morning.  I did get pinched when I told her no shorts. 

I added some oils on her food this morning.   I will also give her the full protocol after school. 

Here is the emails between her teacher and I this morning. 

Kimberly	8:01 AM (52 minutes ago)
to Jessica

Monice woke up in a good mood.  She ate a good solid breakfast.  She was fine until I told her it was cold outside and she had to wear pants, and not her pink shorts she picked out of her dresser.  I got a angry breast squeeze and she conceded to the pants. (I did add the shorts to the backpack in case she decides to strip off her pants. 

I don't think this will be a lasting behavior, I do think this is more just a major frustration of everything change. The expectations, the weather, the clothes, the waking up earlier, everything all after what she probably felt as the perfect summer. 

This weekend, I will also take her to the store, and let HER pick out some pants she likes. There is a part of me that also thinks she is aging to the point of she doesn't want to be treated like a baby anymore.  Like she is challenging not because she is pissed, but wants more of a choice.  Almost like, Do you want to do Math or Art?  Easy choice for her, if she is given one, but just like home, she wants a choice.  

So tomorrow, instead of no choice on pants,  I will give her the choice of Navy pants or Pink Pants and see how that works. 

Jessica

Agreed!  We will continue to problem solve here and at home...here's to a great day...Peace be with all of us during this!!!