Monday, September 30, 2019

Day 28

Day 28

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)

1 Tsp of Now Brand Inulin 
1 Tsp of Nordic Naturals Ultimate Omega Fish Oil

Woah.. talk about crabby morning.  I really think she is going through her 2nd awakening after I raised her dosages.   I did get her to settle down, but wow, she was pissy. 

Aggravation for sure.  Down to she just wanted to be left alone.   Leave her on the toilet.  Let her just relax and watch tv.  She just didn't want to get ready for school.  I turned on the Veggie Tales Silly Song Countdown, and she snapped out of the funk.    But for the first 35 minutes before she was cranky. 

It does not want me to scale back at all.  She was a different kind of cranky before the NP.  It just seems heightened now. 

Sunday, September 29, 2019

Day 27

Day 27

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)

1 Tsp of Now Brand Inulin 
1 Tsp of Nordic Naturals Ultimate Omega Fish Oil

I think we are hitting another awakening, either that or she is bored to tears in the house over this rainy weekend.  She's a little jumpy.  Everything else is great.   Very awake to everything around her.  

Her cough sounds like ours, so she must have picked up what we did the last couple of weeks.  But other than that perfection in her health. 

Saturday, September 28, 2019

Day 26

Day 26

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)

1 Tsp of Now Brand Inulin 
1 Tsp of Nordic Naturals Ultimate Omega Fish Oil

A little cranky this morning. Nothing big, and nothing out of the ordinary.  Slept really well last night.  Playing with my phone, Abby Cadabby and Elmo now after breakfast. 

Monica is alert.  There is no other way to explain.  One might argue she was alert before, and I would agree.  Now there is follow through. She knows where someone put something, and she is going to get it. 

I hid dvds in the cookie, bread, junk cabinet. 

I went to change the laundry.  BOOM. She took it to the next level. 


Friday, September 27, 2019

Day 25 Video

Just a normal night of her playing and expanding her play to self help with getting her own playdoh out of the container.


Day 25

Day 25

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)

1 Tsp of Now Brand Inulin 
1 Tsp of Nordic Naturals Ultimate Omega Fish Oil

Without a doubt, the biggest change so far is the focus/shift in attention from frustrated to okay.  I have noticed that I have also learned to keep calm, in order to help as well.  

Today is superhero day at school.  I stopped at the store yesterday, and picked up a Wonder Woman outfit for $15 bucks. She wanted no part of it after breakfast.  Instead, I put on her Wonder Woman T-Shirt, and grey shorts.  And then she played for twenty minutes before the bus.  As we were getting her bus harness on, and her backpack, I told her I put her outfit in the backpack in case she wanted to wear it later.  She was okay with that, and went outside without incident.  Watched and ran to the bus once it pulled up. 

Almost a month in, and I just wish she was home to play.  

I have had her on Vitamin D3 and K2 for bone health since April 2018.  I really don't want to stop, but I do think I will take a break from it once we run out.  Give the NP a chance to see if Dr N is right on stopping all other supplements.  

Thursday, September 26, 2019

Day 24

Day 24

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)
1 Tsp of Now Brand Inulin 


1 Tsp of Nordic Naturals Ultimate Omega Fish Oil

It is hard to gage how the NP is helping or hurting at school.  While she is in first grade, it is very therapy structured, and she is more like a robot from one station to the next.  Her eating habits improved at school greatly, and less accidents in her pull up, but that could be age too. 

At home she has been happy and hyper. I gave her a long bath last night, and it took a little longer to get her down to sleep, but that was okay too. We went to bed early. 

This morning she woke up and I picked out her clothes.  She wasn't having it.  She wanted the yellow shirt, not the purple one.  She didn't want her skort, but pink shorts.  I thought that was awesome.  

She loves going outside to wait for the bus.  I do it as long as we can, since we live in Illinois, very soon we go from waiting on the porch, to waiting inside. six long months of cold. 

She was so happy to see her bus today she started clapping at the end of this video!


Wednesday, September 25, 2019

Day 23

Day 23

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)
1 Tsp of Now Brand Inulin 
1 Tsp of Nordic Naturals Ultimate Omega Fish Oil

Monica was super at the dentist!  Well, she fought, of course, who are we kidding.  However she likes Dr Megan.  After I placed her in the chair, we papoosed her in, and got the cleaning, flossing, and flouride treatment in 20 minutes.   Now, one might think we restrained her in to get it done, but if you know autism, if she didn't want to be in that chair, we would have never been able to get her in.  It's truly amazing how some professionals really get how to do a procedure on a kid with special needs. 

Today is early release day, so she'll be home 90 minutes early.  I love that. 

I think one of the best parts I have noticed about the NP with Monica, is the awareness she has on the bus in the morning. for three years earlier she was a zombie.  Once she was on the bus, she paid no attention to me.  Now I get full eye contact, and today she waved bye bye to me.  And I am not doing anything different.  I really noticed today, because her seat mate, a girl in her same class, but in kindergarten, is just like Monica was 23 days ago. Just staring past me, while looking at me in the eye.  I can't make this stuff up!  

I want people who read this later to understand, if this was all Monica and I got from the NP, I would be okay with that.  A calmness in her demeanor.  More awareness in her surroundings, getting over frustration and anxiety faster, and less frequent.  All this would be worth it keeping it up every day.  Having hope that it can get even better is the true excitement. 

I stand by what I say all the time.  Her happiness and joy is the most important. The fact she is doing things like chalk before school only makes it more apparent that she wants to do something with that energy that she didn't know how to harness before. Now she gets jumpy and she picks up the chalk.  100% another first. 





Tuesday, September 24, 2019

Day 22

Day 22

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)
1 Tsp of Now Brand Inulin 
1 Tsp of Nordic Naturals Ultimate Omega Fish Oil

Monica woke up a little cranky today.  Nothing like a meltdown.  More like a 13 year old who would rather stay in bed.   She ate breakfast/protocol, and just chilling on the couch another 20 minutes before we wait for the bus. 

Last night was good, a lot of energy, and happy. 

I posted her video of her saying Bye Bye to the NP group on Facebook.  The moderator gave me a hard time about her dose saying it was too high.  She also attached a video talking about the warnings of parents being too impatient. 

It was a good video.  Dr Nemechek talking about giving OVER the suggested amount.  I am half of the suggested amount.  And I have been giving her Fish Oil for the past year. 

I didn't reply with any negative.  I liked the comments, and typed, "Watching now!"

I stand by my dosages.  I will not raise from this dose, only lower if I see any stomach pains.  

My thought was we already started seeing that it was working.  Changing the Fish Oil from one recommended dose via pill to another recommended brand liquid, and upping the Inulin 1/2 tsp wasn't going to harm her.  It would however continue to feed the gut and heal the brain.  

I read so many parents are going through hard intestinal times with this protocol that makes it so difficult to gage.  I spent the end of 2018, and all of 2019, fixing the constipation issues, with more veggies, and Sundown Fish Oil. I stopped all Miralax or enemas early fall 2018 because I knew that was harming her stomach.  I also knew holding her poop for 10 days was awful too.   She's been so much gut better over the past 12 months, going on her own.  Now it's time to continue to fix the gut issues to help her brain heal. 

We have a dental check up at 3:00 today.  That should be fun.  She likes Dr Deb, but I fear her awakening might interfere with a check up.  But we will chug along anyway. 

To anyone that reads this.  This is more for my keeping myself in check.  I want to think things through, and make that decision.  I want to journal all of it, the good, the bad, the great.   I don't mind someone giving me a hard time.  We all know people that have zero patience.  

That is not me. 

Monday, September 23, 2019

Day 21

Day 21

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)
1 Tsp of Now Brand Inulin 
1 Tsp of Nordic Naturals Ultimate Omega Fish Oil

Monica slept really well last night, and woke up happy.  She was a little mad as I was feeding her breakfast. As I think she is getting sick of the baby food.  One day at a time with that.  I have supplemented her with baby food for her vitamins and minerals since her mother left in Oct 2015, as she was basically feeding her milk and oatmeal. She was still on bottles until 3 yr old preschool!   I do mix her fish oil, EVVO, and Inulin in the baby food, so onward we go with that. 

Monica repeated "a buh buh" back to me when I said bye bye to her after her bus driver snapped her in.  First time she did it with witnesses.   We have heard her say it at home a bunch of times, but that extra "good job" from our bus driver might help too!



Her bowels are pretty much the same in 21 days.  The sundown fish oil we gave her for the year before the protocol, has made her quite regular. She goes in her pull up two times a day, but sometimes we catch her, and she will go on the toilet.   She has dry pull ups from urine more before the protocol, and pretty soaked now since we started.  However, school she seems to be going with the other kids. 

There is no doubt in my mind something is happening in her gut and brain since we started 21 days ago.   Sure there have been periods of bouncing off the walls, anger.  I got pinched so fast and hard yesterday, seeing the bruise on my inner arm almost surprised me.  Almost.   

One of the aspects of this protocol is hope.  It's not a false hope.  It's a hope that some of the serious issues of self harm subsides.   I read on another blog about the nature of being a special needs mom.  And there are days that we, as parents, get so frustrated, we don't know if what we are doing causes help or harm.  We keep trying though.  We don't give up. 

I want to share the mom's post below, because I think it is important to read for all. 

Special needs parenting changes us entirely. There is no denying that. Because the truth is -- the first few years are going to pull you so far away from who you used to be that you won't even recognize yourself anymore.

You'll find yourself looking in a mirror, bags under your eyes, either heavier, or skinnier, and not recognize yourself. It looks and feels like you've aged a hundred years. Or maybe you are standing in a crowded room, feeling entirely isolated and alone, and wonder if you are invisible. You'll wonder how your world can be so different. How you can relate anymore.

It will challenge everything you know. You will question yourself. Your purpose. Your strength. You will wonder why. And how. Why my child? And not theirs.

It will challenge your marriage. Your health. The way you parent your other children. Even your decision to have more babies. Your career and finances. Relationships. And not just with people. With God too.

You will experience the greatest love on this earth. And simultaneously wonder how it can be so hard all the time. You'll get shamed for being sad. And for missing the almosts and the 'should be's.'

You'll see the unbelievable beauty that this world holds too. Almost like you've been granted access to a special club. One full of forever hugs, This Little Piggy, Santa and smiles. You'll celebrate milestones long after you should. And it will be amazing no matter when it happens.

You also see unbelievable cruelty. And it will take your breath away the first time it happens to you. To your child. You think you'll be prepared. That you'll come back with some witty, snappy comment. Only, you probably won't. You will try and shield them from evil. And then spend the next few sleepless nights wondering how you can live forever and change the world at the same time.

At first you'll feel like it's a race against time. Against their diagnosis. You'll do everything you possibly can. Your hope will be challenged. Then you'll find acceptance and realistic hope. Then you'll want time to stop. You'll want to keep their bodies small. Because the world is kinder to children.

You’ll have days where you swear you can’t do it anymore. Where you are certain it will never get any easier. That it’s going to be this challenging forever. You’ll almost be unable to picture a world where you stand still. Where you don’t have to fight for basic rights, inclusion and easy.

Yes, special needs parenting changes everything. But here is the secret that you have to learn on your own. It also puts you back together as the person you were meant to be.

That's the part that makes us lucky.


Sunday, September 22, 2019

Day 20

Day 20

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)
1 Tsp of Now Brand Inulin 
1 Tsp of Nordic Naturals Ultimate Omega Fish Oil

Another great night, she went right to sleep, within one song of Josh Groban.  However we stayed up to almost midnight. Her mother and sister came yesterday afternoon, and she was happy wired after they left.   We just chilled, watched tv, and then bedtime. 

Today she woke up in a great mood, had breakfast/protocol, and sitting next to me watching NFL Channel, while she has my phone watching YouTube. The Wheels on the Bus video. 

Tomorrow will be 3 weeks on the protocol.   It's important to blog that while she has had good and bad days, she did that before the protocol.   I can't stress enough the difference is the focus.  It doesn't take much to shift a bad mood, or anxious mood.  Could it be me seeing with different eyes?  Observing more, so I catch it quicker. Yes.  I am aware that the protocol could be me catching the behavior quicker, to shift. 

Autism is so tricky.  This is why I blog daily.  Perhaps when myself of others go back, they can connect the dots.






Saturday, September 21, 2019

Day 19 Picture

Day 19 Picture

Monica's mom and sister visited today.  They watched Coco today.  As you see Monica loves her little sister even if she can't show it in normal average ways.


Day 19

Day 19

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)
1 Tsp of Now Brand Inulin 
1 Tsp of Nordic Naturals Ultimate Omega Fish Oil

Good Morning.    Yesterday was fantastic, at home, her school, and all evening long.  She fell asleep quickly as well. 

I raised her dosage.  Only 1/2 teaspoon more of Inulin.  And the huge pill of recommended Now Fish Oil was really hard to work with.  I went with the recommended Nordic Natural Liquid which came in last night. 

Please understand I am not trying to speed up the gut and brain healing process.  I know it could take years, and I have the patience for that.  I do, however, know Monica.  She is solid through and through. She metabolizes everything quicker than most.  Even allergy meds I gave her in the past, most of the time it's one pill a day.  But even her doctor, said Monica needs more because of her metabolism.  This girl is all muscle. This girl eats regular food, and I supplement with baby food to make sure she isn't just eating hot dogs, bacon, sausage, and pancakes!  

If I see signs of pain, due to gas, or extreme haywire behavior, I will scale back.   Otherwise we move forward 

Friday, September 20, 2019

Day 18

Day 18

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

Best morning so far in a while. Very happy and extra snuggly!

We went roller skating last night, and had a nice time.  I let her do her thing with the kids, and she was really engaged with the others.  It was very warm inside, so at the beginning we took a few breaks at the booth.  But she managed, as did I. She did bite me.  But that was right when we got there, and it was brutally warm. It was like she wanted to skate, but was confused on why it wasn't easier like last time. Last time she never fell.  This time when she was done, she went down just to show me, this is BS. lol

I noticed several new attempts at sounds this morning too.  

So far everything I read about the Nemechek Protocol is exactly what he said it was.  The awakening is just snippets of confusion, and very easy to distract back to what we were doing, or change it up to the next task or play. 

Without a doubt, she is connecting more. It is very hard to put into words.   It is like you see her brain get things, and just be happy with seeing the connection. 





Thursday, September 19, 2019

Day 17

Day 17

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

I got punched in the nose today. Twice. Welcome to the awakening. HA!

Right at this moment, she is fed, and watching youtube, and waiting for school bus time.  One minute she is watching Sesame Street clips, and the next Uma Thurman song by Fall Out Boy.  Yeah.  She has that up and down all over the place behavior. 

OOh.. how appropriate.  Now it is Shake it Off by Taylor Swift. 

When she punched me, I was getting her dressed for school.  I just stared at her the first punch, with angry eyes.  And the second time, I said. YOU DO NOT HIT. 

I am going with distraction to get her and myself through this.  She is the one that needs the change up more than I do. 

She has school today, and this evening is Family Roller Skate night.  We went last year, and I had no idea she was going to pick it up so quick.  I was a skating dancing queen in the late 70s and 80s. However, it is NOT like riding a bike.  The first fall happened in on minute. I thought I broke my butt.  The second was much worse.  Slipped straight back, hit my head on the carpet, which was thin and my head bounced off the cement under.  My forearm looked like a car hit it.   The bruise lasted a month. 



However, I am going again this year.  She loved it.  The teachers loved seeing her after hours.  

This is what I mean about reframing her anxiety. Don't let her idle, is my theory. 


Wednesday, September 18, 2019

Day 16

Day 16

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

I am at the point of believing the awakening is happening. However, it is strange.  Yes, she is super jumpy bouncing off the walls.  Took much longer to get her down to sleep.  Monica' meltdown, or anxiety usually defaults to anger before a meltdown.  While the behavior is similar to this, it is not angry.   It's just jumpy.  That's why I say it is strange.   

Believe me, if this is the difference, I will take it.  It's easy to reframe jumpy, less easy to reframe anger. 

Her and I have been doing more inside and outside.  Playdoh, Music, teaching her how to wash her hair.  Showing her how to climb on the tall electrical boxes in our backyard safely. 

Last night, when I pulled out the new Playdoh set for her, I got 20 kisses while we were playing.  She loves that, as do I. 

She was also extra snuggly about an hour before bedtime.  She was sitting on the couch next to me, just watching her tablet, kissing my head. Normal behavior for sure, but MORE of it, daily.  As I was getting her bedtime ready last night, she went into the family room where Grandpa was gaming, and she was hyper, running around the room, laughing, yelping, smiling.  I knew it would take longer to settle her down, but again, for being jumpy, not mad it is bedtime. 


Tuesday, September 17, 2019

Day 15

Day 15

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil


Monica is back at school.  No fever, wasn't warm.  I dressed her cooler today, and sent an email to her teacher with instructions to call me if she feels off and I will come get her. 

Just received this from her teacher. 

Thanks Kim!

Our girl is definitely in a better mood today.

Will contact if need be.

Thanks for being you!

Grateful for you!


Jessica

I hope all her teachers are this awesome. We have been blessed for four years of school so far.  The first two were at an special needs group at Glacier Ridge Elementary School, at the Wehde Early Childhood Center in Crystal Lake for 3 and 4 year old preschool.  Without those first two years there, I doubt she would be as far adjusted for school as she is currently. 

When she transitioned to Kindergarten, they moved her to South Elementary in their ASPIRE program for Autistic and Special Needs Kids.  She is in the school with other children, and special wing and classes for our kiddos, as well as therapy rooms, playgrounds for all.  I adored her staff last year, and so happy when she stayed in the same classroom for first grade now.  The team knows her, the team knows me.  Consistency is the key with all kids, I think. 

Last topic and back to NP charting. 

There is a group on Facebook specifically for support on the Nemechek Protocol.  I think that group is what causes many of us special needs moms and caregivers to get frustrated.  The angst of so many upset and wanting more progress bleeds through the group. So many people want to alter the dosages or take a time out because of severe mood swings on the protocol.  We are only on day 15, so I don't feel qualified to say anything yet.   I think about the brain.  So little is known about healthy brains.  Monica's mom has a 'healthy brain, talking and reading by 18 months, as well as potty trained, and look at her?  28 years old and it is one bad life choice after another.  I can't imagine the autistic brain and the haywiring, now trying to heal, and process more and sensorize more because the propionic acid is working its way out of the system.  More haywire, more crossed telephone lines, analog in one way, high tech digital in others.  And all the while, a beautiful human soul that just wants to play, listen to music, smile, swing on a swing.  When I think I want to vent, about anything, breaking it down is so much better for me.  This is the main reason I blog, and have for many years on different topics.  This is how I rewire, reset. 

I don't know how I would feel 6-12 months from now on the NP and everything remained basically the same.     I look at the vitamins and minerals, and now oils and fiber in her diet,  and think even if it doesn't change the autism, I am raising a healthy kid who can fight off flus and low energy, and maybe one less meltdown is worth it. 

We are in it people!  Let's love and support the beauty in the good. 

Monday, September 16, 2019

Day 14 Part Two

Day 14 Part Two

Monica's school, her ASPIRE program for 1st grade called me at 10:32 this morning.  They said she was "off".  The back of her neck was warm, and she looked flush.  I had just been sick, so they made the smart call, to just call me.  I did pick her up. 

One of the stipulations I have with her school, and teachers, is just to call me if she is off.   I am a firm believer that if a school, day care, anyone tries to calm a kid that's not going to just self settle down, it only makes frustration levels higher for all.  The kid can't rewire herself.  The teachers have multiple students.  In this way, her school is one of the best of its kind.  She was using her talker to tell them, "Hey, I want my Ipad, Daniel Tiger"  They know she knows it's school time.  But they also know if she's off, she's not there anyway mentally. 

When we got home, her neck is a little warm, but she is not running a fever.   She is eating, drinking, relaxing on the couch, with her tablet, her top hat, and her Daniel Tiger toys.


Day 14

Day 14

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil


Holy jumpy Sunday yesterday!  Literally screaming. And bouncing off the walls.  She did manage to calm down before bed, and it took a little longer to fall asleep.  But nothing bad at all. 

This morning she woke up well.  Ate, snuggled on the couch. She got ready and we waited outside.  She hit her head a few times on the window as Marcia was strapping her in on the bus, but I took it as, enough, let's go to school!  

I don't even want to read about "The Awakening" Period, or try to find out how long this part lasts.  It doesn't matter.  She isn't doing anything to excess, or anything she hasn't done 100 times before.  She has a jumpy couple of days.  Period.  

I guess I would be more afraid of a treatment if they were created drugs for a protocol.  It's Fish Oil, Olive Oil, and Inulin. 

Inulin is a starchy substance found in a wide variety of fruits, vegetables, and herbs, including wheat, onions, bananas, leeks, artichokes, and asparagus. The inulin that is used for medicine is most commonly obtained by soaking chicory roots in hot water.

Inulin is used for high blood fats, including cholesterol and triglycerides. 


The Nemechek Protocol for Autism uses a prebiotic fiber called inulin to reverse and control bacterial overgrowth, and high doses of omega-3 fatty acids to normalize microglial function and normalize the inflammatory state within the brain.



Sunday, September 15, 2019

Day 13 Part Two

Part two

I think for Monica, a lot of time is not to feed into her meltdowns. How?  She was pissed I wouldn't let her go outside. I set her up on the couch.  With some Milk, her toys, books and Fisher Price Little People, and I went back to my laptop. 

Not everything needs to be adjusted. She also has to be able to alter her moods her way, not always ideal, but I don't care.  

WE KNOW OUR KIDDOS!

Day 13

Day 13

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil


I think I spoke too soon. 

Monica is VERY jumpy since last night.   Now, she normally gets exactly like this when her "Mother" goes about two weeks from showing up.  Exactly.  However, how can one tell?

She keeps pointing outside, and mad when I tell her no.  It rained all night, and morning, and every thing is MUD.  The good news is I think mom might show up today.  Not that I get a break or anything but it is always better when she sees mom and her sister.  

If this is an awakening, I am okay with that too.  It's not something I haven't dealt with before.  

I did order this brand from Walmart yesterday.  The estimated arrival date says 9/25.  Ten days away. Walmart is usually faster.   I have been squeezing the Now Brand DHA pills in her baby food, but the comments on the Nordic has been better.  It will be worth it to try if it promotes healing that beautiful brain.  

Once again, I want people to really understand, I don't want to change who Monica is.  She has been such a joy in my life.  And anyone that meets her, adores her.   Even if she never uses words, I am okay with that.  It's the occasional self harm. The head butting. The frustration of not being able to know what she wants because she's done trying.  Those little tweaks is my hope for her. Not to cure autism. 



Saturday, September 14, 2019

Day 12

Day 12

1 Tbsp of Extra Virgin Olive Oil (California Olive Ranch with COOC Seal)
1/2 Tsp of Now Brand Inulin 
1 pill of Now Brand DHA-500 Fish Oil

What a process this could be for those without patience!  Especially with a non verbal child.  (Babbling nonsense as always) Monica turned six at the end of April 2019.

I think for those kiddos on the spectrum that are normally pretty happy children, besides occasional meltdowns it will be hard to know if you are actually helping their brains heal.  

Monica keeps her brain busy.  Her tablet, thumbing through her books, toys.  Outside play.  Music on tv, youtube.  She knows the difference between Josh Groban, and Ed Sheeran, not just by the music, but by facial recognition. 

She uses her IPAD Touch Chat program to tell you what she wants. Albeit Milk, Cookies, Yogurt, Playdoh, Bubbles.. but she will. If there is not an item she has available to show us.  She points to the object and uses the IPAD to tell us what color. 

Many will wonder why I started at 1/2 tsp of Inulin.  We know our kiddos.   Monica is super body healthy.  Every doctor, dentist, therapist has told me that.  I have had her on 1290 ml of Fish oil for a year before I heard about the NP. I also had her on Vit D3 and K2 from another study I had read.  This little girl had trouble pooping until I consulted with her MD, her GP and her Behaviorist and we chose the Fish Oil and the vitamins supplements.  She has been regular every since.  I did change to all the official ingredients recommended by Dr N.  

I did not see any discomfort with her tummy ever in 12 days since she started.  At this point these are her dosages. I won't add to it for at least a year. 

Again.  The entire purpose of this post is because I think there are many kids on the spectrum that are like Monica.  Obviously on the spectrum, even heavy sensory issues, flapping, stimming.. but very hard to tell if we will see any real changes until the brain starts healing.    

Bless you all for sharing this journey with me.  I have had the flu all week, and just finally starting to feel a little better. 


Day 228

Day 228 1 Tbs p of Extra Virgin Olive Oil (Cobram Estate extra virgin olive oil, COOC Seal) 1/2 Tsp ( 2.5ml ) of Nordic Naturals Ultimate...